Science that reaches the people who need it
We fund high-impact research and connect scientists, clinicians, and families through a shared registry and grant program.
Discovery grants
Seed funding for early ideas in gene discovery and disease mechanisms.
Up to $150k • 18 months
Translational grants
Multi-year support to move promising therapies toward the clinic.
Up to $750k • 3 years
Fellowships
Two-year awards for early-career researchers entering the field.
$70k / year • 2 years
The X-Linked Registry
A secure, consent-based database connecting families with studies and helping researchers see the bigger picture. 4,200+ participants and growing.
4,200+
participants
140+
genes tracked
37
active studies
24
countries
Currently funded
Cycle 2026 • 3 active awardsBiomarkers in early diagnosis
Discovery grants
Dr. L. Osei • London
$148,000
Gene-targeted therapy for FMR1
Translational grants
Dr. A. Rivera • Boston
$720,000
Learning outcomes in girls with XLID
Fellowships
Dr. M. Haddad • Toronto
$140,000
Apply for a grant
Tell us about your project. We review applications on a rolling basis.